What's with the delay?

Can someone please explain to me, what the deal is with the lack of communication/return of phone calls from Children's Hospital to the parents of the children they are working on!? It is absolutely ridiculous. I kind of want to send a complain or something. This is the third time over the course of the last month or so that I have tried to reach a nurse-any nurse-in the GI clinic for a returned phone call, and I get nothing. It is more frustrating than I could ever have imagined. This whole process. All I want is for someone, anyone, to please show some interest in my child and in finding out what is wrong with him, but all I get is people looking at me like I am lying while in their doctor's office or hospital, and no return communication. It is just not fair. Last time I called was on Friday morning, at 8:30am, and no return call back. Not even to say, hey you know what we have no results as of yet. For an update, since Elem's procedure on Monday, his diarrhea has increased from about 1-2 a day, to 4-5 complete watery stools a day. Last I heard from the do in the consult after the procedure, hmm...it looks like regular poop. So something is not right here. Doesnt anyone have any compassion around there? I apologize for the downer of my mood, just a lot of overwhelming frustrations. That only lead my mind to wonder and then get more frustrated cause I cant get anyone to communicate with me. Elem is going on 17 months this week.

For the record, this all started when he turned 13 months. You can do the math-that is 4 months of straight miserable diarrhea. And still, I have no answers. I almost am consumed with the feeling of failure for my kid. No answers, no medicine, no sign of relief ahead. It is so miserable when he looks at me like he did today. He pooped and then screamed and ran into my arms. It is not fair for something so annoying as this to be in his life 4-5 times a day. And he doesnt even understand it. I'm sorry Elem for your pain, and for your discomfort. It brings tears to my eyes to see you in pain or uncomfortable. But I can assure you I am trying my best to get an answer. When I stepped into the role of mother, I assumed I would have most of the answers..especially with my background. I had no idea it would be so difficult, to entrust someone else with the care and diagnosis of your baby. I pray for results, fast results, healthy, and clear results. The frustration is overwhelming, and I am mentally and physically drained. :(

Oh and to clear up something Seth always brings to my attention. Elem is always naked because he is always having to have his diaper changed! he, like his mother, has turned into a fan of liking to feel free when in his own household! Can I get an A-man?The poor thing gets dressed and undressed so many times due to the insane number of diaper changes, I try to let him be free and naked when I can. Unfortunately, that tends to be when I get the camera out. And I get picks like the one above. :) Still sweet though.